{"id":4756,"date":"2006-01-19T23:10:21","date_gmt":"2006-01-19T23:10:21","guid":{"rendered":"https:\/\/tomfarandasfolly.com\/?p=4756"},"modified":"2025-09-24T03:46:09","modified_gmt":"2025-09-24T03:46:09","slug":"day_12_transpla","status":"publish","type":"post","link":"https:\/\/tomfarandasfolly.com\/?p=4756","title":{"rendered":"Day 11 &#8211; transplant plus 3"},"content":{"rendered":"<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">Today was a day of a few firsts. <\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">I got my first transfusion. I had my first return visitor (besides Brigid). I set a personal record for visitors (6). For the first time, I talked and saw the boys on a videophone. I threw up for the first time. And I got my first dose of morphine.<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">So in order, my platelets count was 14 and when it goes below 20, they give you a bag of them. They have assured me I am going to need more whole blood as well as platelets. Friends of mine have stockpiled plenty of whole blood for me and platelets are starting to pour in, so the Hospital is pleased about that.<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">Dennis Cannon called and left a voice mail message saying he was headed into Manhattan and was going to stop in, unless I called him back and said otherwise. Dennis had been in on Saturday, along with Denice and the Novotny\u2019s. He arrived a few minutes before Brigid, who got here about 11:15 in the morning. <\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">So the three of us hung out, and I ordered my lunch to be split between the two of them. They decided on salmon.<span style=\"mso-spacerun: yes\">&nbsp; <\/span>(See below \u2013 no way I can eat anything right now.)<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">Then the two videophones turned up. My night nurse from the night before, Nancy, saw pictures of Joe and Tim, and said the social workers could supply two videophones, so we could talk and see each other. They arrived while Brigid was here \u2013 easy to use \u2013 and she took one home. We used them this afternoon, and they worked! Not exactly high definition, but pretty cool anyway. We tried again tonight, but for some reason the video hook-up didn\u2019t work.<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">Lunch arrived late, so Dennis got the whole thing \u2013 Brigid had to get back for the school bus. After eating, Dennis reminded me of his Aunt Lillian, who he\u2019d told me about the prior Saturday. Aunt Lillian was a kind of professional hospital visitor, who tended to overstay her welcome. Dennis said, \u201cI don\u2019t want Aunt Lillian\u2019s reputation\u201d so he took off, after saying, \u201cthanks for lunch.\u201d<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">A bit later Chris Riat stopped by; having emailed me that he was on his way. He donated platelets and then came up. Chris was a player for the North Jersey Rugby Club, when I was the coach a few years ago. He was a very versatile forward \u2013 could play in the front or back row \u2013 and was one of these players you loved to have on the field, because he didn\u2019t take any crap. A number of other team\u2019s ex-rugby players get to see Chris\u2019s handiwork every morning when they shave. All in the line of duty, of course.<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">While Chris was here, and I was talking to him about this journal, two other people suddenly turned up! John Gunderman and his friend Joe. John has mantle cell, is being treated by Dr. Zelenetz, and is about nine weeks behind me in the treatment protocol. I had corresponded by email with Joe, but never with John, and I was glad they came by (John had come in for the rituxin treatment). Joe had found the journal through a link with the Lymphoma Information Network, and contacted me several times by email.<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">I was really pleased. SOLIDARITY.<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">Shortly after Joe, John and Chris left, my friend Tom Sullivan came by. He stopped in briefly and then went down to donate his platelets. Tom is a guy I played rugby with, and he\u2019d taken the initiative to organize blood and platelet donors among my former rugby-playing friends. <\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">IMPORTANT RUGBY NOTE<span style=\"mso-spacerun: yes\">&nbsp; <\/span>\u2013 as rugby people know, rugby friends are forever.<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><strong><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">On the side effect\/treatment front.<\/span><\/span><\/p>\n<\/p>\n<p><\/strong><\/p>\n<\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">Last night I did get a pain med for my throat and mouth \u2013 I think it\u2019s called oxycodine. Worked pretty well and zonked me out for the night. This morning I took a half dose. <\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">I haven\u2019t been eating much at all the last three days,<span style=\"mso-spacerun: yes\">&nbsp; <\/span>\u2013 mostly drinking fluids or have jello, etc. My stomach has been queasy. This morning I ordered cranberry juice, vanilla yogurt and tea with lemon. I had a little bit of each (Maybe not a great combination?) felt nauseous, and tossed it all up into the little kidney dish they give you. Not a big episode \u2013 the whole thing lasted less than 90 seconds. After more than four months of chemo, this is the first time I\u2019d sicked up.<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">Right now, if I take anything other than water or ginger ale at room temperature, I go queasy.<span style=\"mso-spacerun: yes\">&nbsp; <\/span>So that\u2019s all I\u2019m taking.<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">This afternoon, around four, and after everyone had left, I got another half dose of Oxycodine. But two hours later my mouth and throat was really sore, so Pam my nurse said, try the morphine. I did \u2013 a small dose by IV and it did the trick. <\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">Right now \u2013 11 PM \u2013 I just got another morphine dose for the night.<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\">So it\u2019s just a question of waiting these things out \u2013 about nine days to go!<\/span><\/span><\/p>\n<p class=\"MsoNormal\" style=\"MARGIN: 0in 0in 0pt\"><span style=\"FONT-SIZE: 12pt; mso-bidi-font-size: 10.0pt\"><span face=\"Times New Roman\"><\/span><\/span><\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p>\n<\/p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Today was a day of a few firsts. I got my first transfusion. I had my first return visitor (besides Brigid). I set a personal record for visitors (6). For the first time, I talked and saw the boys on a videophone. I threw up for the first time. And I got my first dose [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[],"class_list":["post-4756","post","type-post","status-publish","format-standard","hentry","category-my-lymphoma-and-related-medical-stuff"],"_links":{"self":[{"href":"https:\/\/tomfarandasfolly.com\/index.php?rest_route=\/wp\/v2\/posts\/4756","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/tomfarandasfolly.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/tomfarandasfolly.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/tomfarandasfolly.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/tomfarandasfolly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=4756"}],"version-history":[{"count":1,"href":"https:\/\/tomfarandasfolly.com\/index.php?rest_route=\/wp\/v2\/posts\/4756\/revisions"}],"predecessor-version":[{"id":6228,"href":"https:\/\/tomfarandasfolly.com\/index.php?rest_route=\/wp\/v2\/posts\/4756\/revisions\/6228"}],"wp:attachment":[{"href":"https:\/\/tomfarandasfolly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=4756"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/tomfarandasfolly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=4756"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/tomfarandasfolly.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=4756"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}