Grief and victory: Social influencer who spoke of her ALS disease has died.

Brooke Eby died but she beat the disease – that’s how I see it.

This from the NY Times.

After her diagnosis in 2022, when she was only 33, she became a vocal, witty advocate for people confronting the disease.

Brooke Eby, who after being diagnosed with amyotrophic lateral sclerosis, or A.L.S., at 33 brought her story to social media, using her dry wit and irrepressible charm to raise awareness and build connections among the hundreds of thousands of people who also struggle with the fatal disease, died on Thursday in Maryland. She was 37.

Her sister, Sarah Eby, said the cause was complications from A.L.S., also known as Lou Gehrig’s disease. She did not provide a specific location.

Through videos posted daily to TikTok, Instagram and other sites under the handle @LimpBroozkit, Ms. Eby (EE-bee) discussed the daily surprises, difficulties and moments of levity she encountered as her disease progressed, in the process amassing about half a million followers.

She incorporated social media tropes to get her message across — one of her first videos to go viral was a “GRWM,” or “get ready with me,” a style of post in which someone discusses hair, makeup or clothing while getting ready.