Here’s how the meeting went:
No big concern about the lowered blood cell counts – could be due to a number of factors. I was given a shot of Neutropena (sp?) to try and boost the wbc count. The neupogen last week had very little effect – count went from 1.6 to 1.8. I will have an appointment with Dr. Caron at the Sleepy Hollow MSK branch next week for a blood count and shot of Darby to boost the rbc’s.
Activity and dietary restrictions are lifted. But I am still going to ease into things.
No problem going to Disney (flying out Easter Sunday night for six nights).
I will stay under the care of the transplant service at least another month – will have a CAT scan the end of April and see Dr. K the first week of May. He said this is standard practice.
He assured us again that I am "doing very well."
The one discordant note was when I mentioned the port and how the plan was to leave it in until my last treatment of rituxin in about four months. He hinted that I might want to leave it in for two years! YIKES. Only reason to leave it in is to provide option to use it, and I have figured all along that I am done with the last rituxin treatments. He then said, "but you can have it removed if you’d like." So this is an issue I will take up with him in May.
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